Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent

L Dalton, E Rapa, S Ziebland, T Rochat, B Kelly… - The Lancet, 2019 - thelancet.com
Many adults diagnosed with a life-threatening condition have children living at home; they
and their partners face the dual challenge of coping with the diagnosis while trying to …

Communication with children and adolescents about the diagnosis of their own life-threatening condition

A Stein, L Dalton, E Rapa, M Bluebond-Langner… - The Lancet, 2019 - thelancet.com
When a child is diagnosed with a life-threatening condition, one of the most challenging
tasks facing health-care professionals is how to communicate this to the child, and to their …

What elements of a systems' approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19

E Harrop, M Mann, L Semedo, D Chao… - Palliative …, 2020 - journals.sagepub.com
Background: The global COVID-19 pandemic has left health and social care systems facing
the challenge of supporting large numbers of bereaved people in difficult and …

[HTML][HTML] Pain care for patients with epidermolysis bullosa: best care practice guidelines

KR Goldschneider, J Good, E Harrop, C Liossi… - BMC medicine, 2014 - Springer
Background Inherited epidermolysis bullosa (EB) comprises a group of rare disorders that
have multi-system effects and patients present with a number of both acute and chronic pain …

The challenges of caring for children who require complex medical care at home:'The go between for everyone is the parent and as the parent that's an awful lot of …

BF Page, L Hinton, E Harrop, C Vincent - Health Expectations, 2020 - Wiley Online Library
Background Increasing numbers of children with complex health‐care needs are cared for at
home by their family. The aim of this qualitative study was to explore the challenges …

Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved …

LE Selman, DJJ Farnell, M Longo, S Goss… - Palliative …, 2022 - journals.sagepub.com
Background: Experiences of end-of-life care and early bereavement during the COVID-19
pandemic are poorly understood. Aim: To identify clinical and demographic risk factors for …

Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic

E Harrop, S Goss, D Farnell, M Longo… - Palliative …, 2021 - journals.sagepub.com
Background: The COVID-19 pandemic is a mass bereavement event which has profoundly
disrupted grief experiences. Understanding support needs and access to support among …

Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus …

S Sivell, H Prout, N Hopewell-Kelly… - BMJ supportive & …, 2019 - spcare.bmj.com
Objectives To present and discuss the views of researchers at an academic palliative care
research centre on research encounters with terminally ill patients in the home setting and to …

'It was brutal. It still is': a qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys

A Torrens-Burton, S Goss, E Sutton… - Palliative care and …, 2022 - journals.sagepub.com
Background: The COVID-19 pandemic has been a devastating, mass bereavement event
characterised by high levels of disruption to end-of-life, grieving and coping processes …

[HTML][HTML] “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family …

E Harrop, F Morgan, A Byrne, A Nelson - BMC palliative care, 2016 - Springer
Background Research suggests that there may be bereavement experiences and support
needs which are specific to family caregivers providing end of life care (EoLC), although this …