Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent
Many adults diagnosed with a life-threatening condition have children living at home; they
and their partners face the dual challenge of coping with the diagnosis while trying to …
and their partners face the dual challenge of coping with the diagnosis while trying to …
Communication with children and adolescents about the diagnosis of their own life-threatening condition
When a child is diagnosed with a life-threatening condition, one of the most challenging
tasks facing health-care professionals is how to communicate this to the child, and to their …
tasks facing health-care professionals is how to communicate this to the child, and to their …
What elements of a systems' approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19
E Harrop, M Mann, L Semedo, D Chao… - Palliative …, 2020 - journals.sagepub.com
Background: The global COVID-19 pandemic has left health and social care systems facing
the challenge of supporting large numbers of bereaved people in difficult and …
the challenge of supporting large numbers of bereaved people in difficult and …
[HTML][HTML] Pain care for patients with epidermolysis bullosa: best care practice guidelines
KR Goldschneider, J Good, E Harrop, C Liossi… - BMC medicine, 2014 - Springer
Background Inherited epidermolysis bullosa (EB) comprises a group of rare disorders that
have multi-system effects and patients present with a number of both acute and chronic pain …
have multi-system effects and patients present with a number of both acute and chronic pain …
The challenges of caring for children who require complex medical care at home:'The go between for everyone is the parent and as the parent that's an awful lot of …
Background Increasing numbers of children with complex health‐care needs are cared for at
home by their family. The aim of this qualitative study was to explore the challenges …
home by their family. The aim of this qualitative study was to explore the challenges …
Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved …
LE Selman, DJJ Farnell, M Longo, S Goss… - Palliative …, 2022 - journals.sagepub.com
Background: Experiences of end-of-life care and early bereavement during the COVID-19
pandemic are poorly understood. Aim: To identify clinical and demographic risk factors for …
pandemic are poorly understood. Aim: To identify clinical and demographic risk factors for …
Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic
E Harrop, S Goss, D Farnell, M Longo… - Palliative …, 2021 - journals.sagepub.com
Background: The COVID-19 pandemic is a mass bereavement event which has profoundly
disrupted grief experiences. Understanding support needs and access to support among …
disrupted grief experiences. Understanding support needs and access to support among …
Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus …
S Sivell, H Prout, N Hopewell-Kelly… - BMJ supportive & …, 2019 - spcare.bmj.com
Objectives To present and discuss the views of researchers at an academic palliative care
research centre on research encounters with terminally ill patients in the home setting and to …
research centre on research encounters with terminally ill patients in the home setting and to …
'It was brutal. It still is': a qualitative analysis of the challenges of bereavement during the COVID-19 pandemic reported in two national surveys
A Torrens-Burton, S Goss, E Sutton… - Palliative care and …, 2022 - journals.sagepub.com
Background: The COVID-19 pandemic has been a devastating, mass bereavement event
characterised by high levels of disruption to end-of-life, grieving and coping processes …
characterised by high levels of disruption to end-of-life, grieving and coping processes …
[HTML][HTML] “It still haunts me whether we did the right thing”: a qualitative analysis of free text survey data on the bereavement experiences and support needs of family …
E Harrop, F Morgan, A Byrne, A Nelson - BMC palliative care, 2016 - Springer
Background Research suggests that there may be bereavement experiences and support
needs which are specific to family caregivers providing end of life care (EoLC), although this …
needs which are specific to family caregivers providing end of life care (EoLC), although this …