Skip to main content

Thank you for visiting nature.com. You are using a browser version with limited support for CSS. To obtain the best experience, we recommend you use a more up to date browser (or turn off compatibility mode in Internet Explorer). In the meantime, to ensure continued support, we are displaying the site without styles and JavaScript.

  • Original Article
  • Published:

Communicating with parents of premature infants: who is the informant?

Abstract

Objectives:

To determine what sources of information are most helpful for neonatal intensive care unit (NICU) parents, who provides NICU parents with the information, and also what expectations parents have regarding obtaining information.

Study design:

A 19-item questionnaire was given to the parents of infants 32 weeks or younger prior to discharge from the NICU.

Results:

Out of the 101 parents who consented, almost all of the parents (96%) felt that ‘the medical team gave them the information they needed about their baby’ and that the ‘neonatologist did a good job of communicating’ with them (91%). However, the nurse was chosen as ‘the person who spent the most time explaining the baby's condition, ‘the best source of information,’ and the person who told them ‘about important changes in their baby's condition’ (P<0.01).

Conclusion:

Although the neonatologist's role in parent education is satisfactory, the parents identified the nurses as the primary source of information.

This is a preview of subscription content, access via your institution

Access options

Buy this article

Prices may be subject to local taxes which are calculated during checkout

Similar content being viewed by others

References

  1. Kenner C . Caring for the NICU parent. J Perinat Neonatal Nurs 1990; 4(3): 78–87.

    Article  CAS  PubMed  Google Scholar 

  2. Kenner C, Lott JW . Parent transition after discharge from the NICU. Neonatal Network 1990; 9(2): 31–37.

    CAS  PubMed  Google Scholar 

  3. Bass LS . What do parents need when their infant is a patient in the NICU? Neonatal Network 1991; 10(4): 25–33.

    CAS  PubMed  Google Scholar 

  4. Brazy JE, Anderson BMH, Becker PT, Becker M . How parents of premature infants gather information and obtain support. Neonatal Network 2001; 20(2): 41–48.

    Article  CAS  PubMed  Google Scholar 

  5. Blackington SM, McLauchlan T . Continuous quality improvement in the neonatal intensive care unit: Evaluating parent satisfaction. J Nurs Care Qual 1995; 9(4): 78–85.

    Article  CAS  PubMed  Google Scholar 

  6. Wereszczak J, Miles MS, Holditch-Davis D . Maternal recall of the neonatal intensive care unit. Neonatal Network 1997; 16(4): 33–40.

    CAS  PubMed  Google Scholar 

  7. Hunter RS, Kilstrom N, Kraybill EN, Loda F . Antecedents of child abuse and neglect in premature infants: a prospective study in a newborn intensive care unit. Pediatrics 1978; 61(4): 629–635.

    CAS  PubMed  Google Scholar 

  8. Harrison H . The principles of family-centered neonatal care. Pediatrics 1993; 92(5): 643–649.

    CAS  PubMed  Google Scholar 

  9. Shallaberger SG, Thompson TL . The critical times: Meeting parental communication needs throughout the NICU experience. Neonatal Network 1993; 12(2): 39–44.

    Google Scholar 

  10. Robinson TMS . Teaching parents in the NICU. Neonatal Network 1991; 10(2): 73–74.

    CAS  PubMed  Google Scholar 

  11. Paul DA, Epps S, Leef KH, Stefano JL . Prenatal consultation with a neonatologist prior to preterm delivery. J Perinatol 2001; 21: 1–7.

    Article  Google Scholar 

  12. Dhillon AS, Albersheim SG, Alsaad S, Pargass NS, Zupancic JAF . Internet use and perceptions of information reliability by parents in a neonatal intensive care unit. J Perinatol 2003; 23: 420–424.

    Article  PubMed  Google Scholar 

  13. Ballard JL, Khoury JC, Wedig K, Wang L, Eilers-Walsman BL, Lipp R . New ballard score, expanded to include extremely premature infants. J Pediatr 1991; 119: 417–423.

    Article  CAS  PubMed  Google Scholar 

  14. Papile LA, Burstein R, Kofler H . Incidence and evolution of subependymal and intraventricular hemorrhage: a study of infants with birth weights less than 1500 g. J Pediatr 1978; 92: 5.

    Article  Google Scholar 

  15. Richardson DK, Gray JE, McCormick MC, Workman K, Goldmann DA . Score for neonatal acute physiology: a physiologic severity index for neonatal intensive care. Pediatrics 1993; 91: 617–623.

    CAS  PubMed  Google Scholar 

  16. Kassity N, Lockridge T . Should parents participate in patient rounds in the NICU? MCN AM J Matern Child Nurs 1999; 24(2): 64–65.

    Article  CAS  PubMed  Google Scholar 

  17. Kowalski WJ, Lawson MD, Oelberg DG . Parents and nurses perceptions of confidentiality, rounding and visitation policy in a neonatal intensive care unit. Neonatal Intens Care 2003; 16(3): 46–50.

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to W J Kowalski.

Rights and permissions

Reprints and permissions

About this article

Cite this article

Kowalski, W., Leef, K., Mackley, A. et al. Communicating with parents of premature infants: who is the informant?. J Perinatol 26, 44–48 (2006). https://doi.org/10.1038/sj.jp.7211409

Download citation

  • Received:

  • Revised:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1038/sj.jp.7211409

Keywords

This article is cited by

Search

Quick links