Adolescent health briefsVideo intervention/prevention assessment: a patient-centered methodology for understanding the adolescent illness experience1
Section snippets
Sample selection
In qualitative inquiry that investigates small populations in great detail, it is critical to work with research participants who most accurately represent the population being studied. This issue is addressed by selecting exemplars (13), individuals in whom observable phenomena represent the general phenomena of investigative interest. Applying this concept to health research with VIA, we recruit exemplars who meet clinical diagnostic criteria and represent the diversity of gender, race,
Results
Results from the VIA–Asthma pilot, portions of which have been reported elsewhere 17, 43, 44, were rich and varied. The video documentation of participants’ day-to-day lives and environments yielded different and more detailed data than had the medical histories. A majority of the home and neighborhood tours done for the pilot study showed asthma triggers that were specifically asked about in the CSVR interview but not acknowledged by the participants (43). Exposures to dust, mold,
Applications
Results of the VIA pilot study indicated three areas in which to implement the VIA methodology: as research tool, as clinical intervention, and as patient-centered communication.
Conclusion
Providing a unique patient-centered view of the world of adolescents and their experience of illness, VIA can be an effective means of expanding our knowledge of disease beyond the clinical setting. In a sense, it uses contemporary communications technology and methods of qualitative inquiry to return to the traditional house call. The illness narratives that the young people who live with asthma produced yield a body of important information about this disease that could not have been obtained
Acknowledgements
This research was presented in part on March 5, 1998, at the Society for Adolescent Medicine (SAM) meeting in Atlanta, Georgia, at which Dr. Rich received the SAM New Investigator Award for this work. The development and pilot implementation of the VIA methodology was funded in part by the John W. Alden Trust, Arthur Vining Davis Foundations, Deborah Munroe Noonan Memorial Fund, Gerondelis Foundation, Agnes M. Lindsay Trust, and the Mary A. and John M. McCarthy Foundation. The authors thank
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