Table 1

An ethical approach to patient and public involvement (PPI): key principles

StepEthical approach
 1Prioritise PPI with children and young people
 2Agree language and work towards a shared understanding of tasks
 3Gain consent for PPI
 4Maximise the benefits for PPI group members
 5Minimise the risk of harm
 6Ensure equity of access to PPI
 7Provide training for the researcher
 8Offer training for the PPI group
 9Provide funding and recognition