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‘Nothing about us without us’: considerations for research involving young people
  1. Janet E McDonagh1,
  2. Belinda Bateman2
  1. 1Department of Paediatric and Adolescent Rheumatology, University of Birmingham, Birmingham Children's Hospital Foundation Trust, Birmingham, UK
  2. 2Department of Paediatrics, Northumbria Healthcare Foundation Trust, North Shields, UK
  1. Correspondence to Dr Janet E McDonagh, Senior Lecturer in Paediatric and Adolescent Rheumatology & Clinical Lead for Adolescent Health, University of Birmingham, Birmingham Children's Hospital NHS Foundation Trust, Steelhouse Lane, Birmingham B4 6NH, UK; j.e.mcdonagh{at}


Research development in the adolescent health arena is increasingly called for, given the relative lack of robust data on the health of young people. However, specific issues need to be considered when researching this age group. Such issues include participation of young people in the research process, availability of adolescent-specific data, developmental considerations and the interface between paediatric and adult-orientated healthcare. The aim of this paper is to highlight the importance of participation of young people in research and to discuss the key areas for consideration for practitioners when conducting research involving young people.

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  • Competing interest None.

  • Provenance and peer review Commissioned; externally peer reviewed.