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A fair reason for failing to thrive

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  • The home page of the family support group “Cystinosis Foundation UK” can be found at

    The name of the child on whom this article is based has been changed.

  • Funding: RJMC is supported by the Medical Research Council.

  • Competing interests: None.

  • Patient consent: Parental/guardian informed consent was obtained for publication of the person’s details and for the publication of figs 3 and 4 in this report.