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Contributors INML wrote the main draft of the epilogue. MPT identified the patient for this paper and critically revised it.
Competing interests None declared.
Patient consent Parental/guardian consent obtained.
Provenance and peer review Not commissioned; internally peer reviewed.
Data sharing statement There are no unpublished data from this epilogue.
Collaborators Iona Natasha Mary Liddicoat, Mark Peter Tighe, Sue Barraclough, Joseph Jacoby.