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The KEY to success: managing children’s complex packages of community support

Correspondence to:
For correspondence:
Professor Jane Noyes
College of Health and Behavioural Science, Department of Nursing, Midwifery and Health Studies, University of Wales, Bangor, Gwynedd, LL57 2DG, UK; jane.noyes@bangor.ac.uk

Keywords: National Health Service; multi-agency care; community support

The first 150 words of the full text of this article appear below.

Nathan is 12 years old and dependent on ventilation 24 hours a day following an accident two years ago. He is quadriplegic, uses an electric wheelchair and needs help with all aspects of personal care. He lives at home with his mum and older brother; his father left the family soon after Nathan’s accident.

COMMENT

• Recent advances in practice have increased survival rates in infants and children following premature birth, critical illness and accidents, but some remain dependent on technologies such as ventilation, dialysis, artificial feeding and oxygen therapy.^1,2 In addition, such technologies are increasingly used by children with congenital anomalies and progressive life-limiting diseases—for example, cystic fibrosis and muscular dystrophy. Thus, illness trajectories in these children have been extended beyond our current range of knowledge and experience. It is now common that such "technology-dependent" children require a high cost package of support services, sometimes delivered in partnership with the private . . . [Full text of this article]